Michigan’s plan for sickle cell disease across the lifespan: Lessons learned for California.

The Michigan Department of Health and Human Services created a state action plan for sickle cell in 2015 that is being used as a model plan by the federal Health Resources & Services Administration.

This webinar will introduce Michigan’s “Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan.”

The webinar will focus particularly on lessons learned from creating and implementing the plan since 2015. It will also focus on the role of the key governmental stakeholders and their interaction with clinical and community based partners.

Presenters are Dr. Wanda Whitten-Shurney and Ms. Dominic Smith, who were both involved in writing the Michigan plan.

Dr. Whitten-Shurney has served as the director of the Newborn Sickle Cell Screening Program at the Children’s Hospital of Michigan for many years. She is the chief executive officer and medical director of the Michigan chapter of the SCDAA.

Dominic Smith, MSA, is the Hemoglobinopathy Program Coordinator at the Michigan Department of Health and Human Services. She works in the Lifecourse Epidemiology & Genomics Division. She was the chief planner and writer for Michigan’s Public Health Plan to Address Sickle Cell Disease Across the Lifespan.

After registering, you will receive a confirmation email containing information about joining the webinar.

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Webinar Series

  • Advancing World-Class Science and Patient Engagement: CIRM’s Sickle Cell Disease Portfolio CIRM’s research programs.

  • End-of-Life Healthcare Utilization in Sickle Cell Disease and the Palliative Care Model

  • SCDC Program Findings and Activities + Future Directions

  • Diversifying the Blood Donor Pool: The need for African American donors to support Sickle Cell Patients

  • Adult Health Care for Sickle Cell Disease: How to Make it Better

  • This webinar is on collaboration and community in sickle cell. Dr. Nik Abdul Rashid and Ms. Linetta Barnes from Nevada will present on how a clinical group and community-based organization work together to improve care and quality of life for people living with sickle cell disease.

  • What’s new at the Sickle Cell Disease Association of America (SCDAA) ? Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer

  • Stepping Up into Adult Care: The Sickle Cell Trevor Thompson Transition (ST3P-UP) Project. Presented by Dr. Ifeyinwa (Ify) Osunkwo, Carolinas HealthCare System, and Dr. Raymona Lawrence, Georgia Southern University.

  • Community Health Workers and Mobile Apps for Transition from Pediatric- to Adult-focused Sickle Cell Care. Presented by Dr. Kim Smith-Whitley, Clinical Director of the Division of Hematology and Director of the Comprehensive Sickle Cell Center at Children’s Hospital of Philadelphia.

  • Innovations in Health Care Transition from Pediatric to Adult Care. Nov 1, 2018 10:00 AM PDT. Peggy McManus, MHS, and Patience White, MD, MA, from the “Got Transition?” program will speak about innovations in health care transition from pediatric to adult care. Register for Webinar ->

  • Wally R. Smith, MD is the Florence Neal Cooper Smith Professor of Sickle Cell Disease at Virginia Commonwealth University (VCU). He also serves as the Vice-Chairman for Research of the Division of General Internal Medicine and is the former Scientific Director of the Center on Health Disparities at VCU. In addition, he is a member […]

  • Michigan’s plan for sickle cell disease across the lifespan: Lessons learned for California. The Michigan Department of Health and Human Services created a state action plan for sickle cell in 2015 that is being used as a model plan by the federal Health Resources & Services Administration.

  • Come hear lessons learned and recommendations stemming from the National Institute for Children’s Health Quality (NICHQ)-led Sickle Cell Disease Treatment Demonstration Program. The national program focused on improving the quality and access to care for patients with sickle cell disease.

  • Neuropathic pain: Can stress and pain itself cause a sickle crisis? by Dr. Thomas Coates. Tuesday, November 14, 2017, from 10-11:30 am PDT. Dr. Coates is the section head of Hematology in the division of Hematology Oncology at Children’s Hospital Los Angeles, and the University of Southern California.

  • Reducing transfusion complications and other surveillance-supported efforts in hemoglobin disorders. By Dr. Angela Snyder, Dr. Jane Branscomb and Dr. Ross Fasano.

  • Evaluating and Addressing Challenges to Optimal Sickle Cell Disease Care, Within the Health Literate Care Model. Dr. Marsha Treadwell, Clinical Scientist at the UCSF Benioff Children’s Hospital Oakland.

  • A Case Study: A few dedicated professionals discuss how and why they created a new county clinic in South Los Angeles.

  • Translating Health Services Research in Sickle Cell Disease to Policy.

  • Enhancing Access to care for Sickle Cell Disease in South Carolina.

  • Emerging Treatments in SCD.

  • Older Adults and Sickle Cell Disease.

  • Project Introduction, presented by Susan Paulukonis and Mary Hulihan.