Adult Health Care for Sickle Cell Disease: How to Make it Better

Webinar Series

  • Date: Sept/28/20 (Monday) 10:00am PST: Advancing World-Class Science and Patient Engagement: CIRM’s Sickle Cell Disease Portfolio CIRM’s research programs.

  • End-of-Life Healthcare Utilization in Sickle Cell Disease and the Palliative Care Model

  • SCDC Program Findings and Activities + Future Directions

  • Diversifying the Blood Donor Pool: The need for African American donors to support Sickle Cell Patients

  • Adult Health Care for Sickle Cell Disease: How to Make it Better

  • This webinar is on collaboration and community in sickle cell. Dr. Nik Abdul Rashid and Ms. Linetta Barnes from Nevada will present on how a clinical group and community-based organization work together to improve care and quality of life for people living with sickle cell disease.

  • What’s new at the Sickle Cell Disease Association of America (SCDAA) ? Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer

  • Stepping Up into Adult Care: The Sickle Cell Trevor Thompson Transition (ST3P-UP) Project. Presented by Dr. Ifeyinwa (Ify) Osunkwo, Carolinas HealthCare System, and Dr. Raymona Lawrence, Georgia Southern University.

  • Community Health Workers and Mobile Apps for Transition from Pediatric- to Adult-focused Sickle Cell Care. Presented by Dr. Kim Smith-Whitley, Clinical Director of the Division of Hematology and Director of the Comprehensive Sickle Cell Center at Children’s Hospital of Philadelphia.

  • Innovations in Health Care Transition from Pediatric to Adult Care. Nov 1, 2018 10:00 AM PDT. Peggy McManus, MHS, and Patience White, MD, MA, from the “Got Transition?” program will speak about innovations in health care transition from pediatric to adult care. Register for Webinar ->

  • Wally R. Smith, MD is the Florence Neal Cooper Smith Professor of Sickle Cell Disease at Virginia Commonwealth University (VCU). He also serves as the Vice-Chairman for Research of the Division of General Internal Medicine and is the former Scientific Director of the Center on Health Disparities at VCU. In addition, he is a member […]

  • Michigan’s plan for sickle cell disease across the lifespan: Lessons learned for California. The Michigan Department of Health and Human Services created a state action plan for sickle cell in 2015 that is being used as a model plan by the federal Health Resources & Services Administration.

  • Come hear lessons learned and recommendations stemming from the National Institute for Children’s Health Quality (NICHQ)-led Sickle Cell Disease Treatment Demonstration Program. The national program focused on improving the quality and access to care for patients with sickle cell disease.

  • Neuropathic pain: Can stress and pain itself cause a sickle crisis? by Dr. Thomas Coates. Tuesday, November 14, 2017, from 10-11:30 am PDT. Dr. Coates is the section head of Hematology in the division of Hematology Oncology at Children’s Hospital Los Angeles, and the University of Southern California.

  • Reducing transfusion complications and other surveillance-supported efforts in hemoglobin disorders. By Dr. Angela Snyder, Dr. Jane Branscomb and Dr. Ross Fasano.

  • Evaluating and Addressing Challenges to Optimal Sickle Cell Disease Care, Within the Health Literate Care Model. Dr. Marsha Treadwell, Clinical Scientist at the UCSF Benioff Children’s Hospital Oakland.

  • A Case Study: A few dedicated professionals discuss how and why they created a new county clinic in South Los Angeles.

  • Translating Health Services Research in Sickle Cell Disease to Policy.

  • Enhancing Access to care for Sickle Cell Disease in South Carolina.

  • Emerging Treatments in SCD.

  • Older Adults and Sickle Cell Disease.

  • Project Introduction, presented by Susan Paulukonis and Mary Hulihan.