What Causes Sickle Cell…and How Are We Treating It?
Sickle cell disease got its name from mutated, misshapen red blood cells. Seeker sat down with Marsha Treadwell a clinical psychologist and scientists at UCSF Benioff Children’s Hospital in Oakland, California. Treadwell has worked with the sickle cell community for nearly 20 years.
Overview of Sickle Cell Disease
Peter Salgo, MD, HCPLive Peer Exchange “Sickle Cell Disease: Diagnosis, Screening, and Treatment.” Sickle cell disease is an inherited disease that affects red blood cells with an abnormal version of hemoglobin. The disease is associated with acute and chronic complications and shortened life spans.
Sickle Cell Has Many Faces (Part 1)
Did you know that sickle cell disease (SCD) affects millions of people throughout the world? Although SCD is most common among African Americans in the United States, it can also affect Hispanics and people whose ancestors come from countries in South Asia (such as India), southern Europe (such as Greece and Italy), and the Middle East (such as Saudi Arabia and Lebanon).
Sickle Cell Has Many Faces (Part 2)
The misunderstanding that sickle cell disease (SCD) only affects African Americans may lead to delays in treatment for some patients. It’s important for healthcare providers, community workers, policy makers, and other SCD supporters to know that SCD affects diverse groups, so that all people with SCD can be properly diagnosed and treated.
Stepping Up: Kevin’s Decision (Part 1)
Transition from pediatric to adult care can be a challenging time for people with SCD because their health often gets worse during this time. Kevin shares how he took more ownership over his health when making the decision to get back on hydroxyurea, the main medicine for complications related to SCD.
Stepping Up: Calvanay’s Advice (Part 2)
Transition from pediatric to adult care can be a challenging time for people with SCD because their health often gets worse during this time. Calvanay shares her advice about preparing to take on more responsibility for your health and health care during transition.
Sickle Cell Patients Finally Have A Clinic In South Los Angeles
Nearly 100,000 Americans have sickle cell disease, but very few doctors know how to treat it.
Dr. Marsha Treadwell – UCSF Benioff Children’s Hospital Oakland
Sticking to a daily medication regime can help SCD patients manage their disease, but sometimes it’s hard for patients to remember to take medication. The Sickle Cell Center at Children’s Hospital & Research Center Oakland is working with a technology that monitors when pills are removed from a prescription bottle. The hardware, called GlowCaps, fits into pill bottles and can play a reminder when it’s time to take a medication, as well as send email reminders to help patients stick to regiments.
National Public Radio (Part 1)
Sickle Cell Patients Endure Discrimination, Poor Care And Shortened Lives
National Public Radio (Part 2)
Discrimination can affect the treatment of African-Americans with sickle cell disease, leading to premature death. Here is a success story from an Oakland, Calif., center dedicated to treatment.
Dr. Elliott Vichinsky – UCSF Benioff Children’s Hospital Oakland
Dr. Elliott Vichinsky, Division Chief of Hematology/Oncology (cancer) at UCSF Benioff Children’s Hospital Oakland discusses the work being done at UCSF Benioff Children’s Hospital Oakland. From Children’s Blood and Marrow Transplantation Program, which has cured hundreds of children with sickle cell disease, thalassemia, and various cancers to the implementing of newborn screening programs for blood diseases in California and throughout the world, Dr. Vichinsky also stresses the importance of connecting with the entire patient family so that they feel supported throughout their child’s treatment.
“It’s Your Health Network” – Dr. Elliott Vichinsky
Listen to Dr. Elliott Vichinsky, Director of Hematology/Oncology at UCSF Benioff Children’s Hospital Oakland, talk to “It’s Your Health Network,” about the need for sickle cell education and awareness during International Sickle Cell Day.
Sickle Cell Public Service Announcement
The PHRESH blood awareness campaign is kicking off with the production of a Sickle Cell Public Service Announcement. The video below brings attention to the need for blood donors across the nation.
Face It Together- Network of Care
Sickle Cell Disease is the most common genetic blood disease in the country. But most people know far too little about it. The Northern California Network of Care for Sickle Cell Disease at UCSF Benioff Children’s Hospital Oakland is attempting to change that, by providing the needed education and resources to health providers and the community at large. See the clip, join the Network, and face the facts.