Basics about Sickle Cell:
CDC’s Sickle Cell Data Collection Program
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Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’
CHICAGO — The day before his 30th birthday, Marqus Valentine was in a panic. “I was so scared for midnight to come rolling around because subconsciously I was like, ‘This is it. Tomorrow’s my last day on Earth,’” he said.
Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives
For more than a year, NeDina Brocks-Capla avoided one room in her large, brightly colored San Francisco house — the bathroom on the second floor.
“It was really hard to bathe in here, and I found myself not wanting to touch the walls,” she explained. The bathroom is where Brocks-Capla’s son Kareem Jones died in 2013 at age 36, from sickle cell disease.