Library
Advocacy
1) Sickle Cell Disease Foundation of California
2) Sickle Cell Community Advisory Council of Northern California
For Patients
Basics about Sickle Cell:
1) CDC Facts about Sickle Cell
2) NHLBI Facts about Sickle Cell
3) Statistics about Sickle Cell in California
4) 5 Fast Facts about Sickle Cell
5) Signs and Symptoms of Sickle Cell Disease
CDC’s Sickle Cell Data Collection Program
Healthy Living and
Managing Pain
4) Nine Steps to Living Well with Sickle Cell Disease In College
5) Confronting Barriers to Care
Opioid Treatment
Transition Materials
1) Teens with Sickle Cell Disease
Moving from Pediatric Care to Adult Care
2) Parents / Caregivers Quick Guide to
Transition from Pediatric to Adult Care
3) Healthcare Transitions for Youth with Sickle Cell Disease
Treatments
2) Sickle Options: Make the Right Decision for You
3) History of treatment and care flyer
4) Directory of Sickle Cell providers
5) Hydroxyurea: What you should know
- Adult (French)
- Adult (English)
- Adult (Spanish)
- Pediatric (French)
- Pediatric (English)
- Pediatric (Spanish)
6) Siklos Hydroxyurea: Hydroxyurea-based treatment for pediatric patients
7) TCD Ultrasound and Sickle Cell Disease
Specific treatments
1) Sickle Cell Disease and Pregnancy
2) Getting screened for sickle cell if you want to have a child
Articles
Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’
CHICAGO — The day before his 30th birthday, Marqus Valentine was in a panic. “I was so scared for midnight to come rolling around because subconsciously I was like, ‘This is it. Tomorrow’s my last day on Earth,’” he said.
Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives
For more than a year, NeDina Brocks-Capla avoided one room in her large, brightly colored San Francisco house — the bathroom on the second floor.
“It was really hard to bathe in here, and I found myself not wanting to touch the walls,” she explained. The bathroom is where Brocks-Capla’s son Kareem Jones died in 2013 at age 36, from sickle cell disease.