Fresno Town Hall

Join us for our first Town Hall Meeting as we discuss Access to Care in Fresno: Sickle Cell Disease in Central California

By |2020-05-14T19:57:20+00:00May 13th, 2020|Action, Event|Comments Off on Fresno Town Hall

Webinar 12

Innovations in Health Care Transition from Pediatric to Adult Care. Nov 1, 2018 10:00 AM PDT. Peggy McManus, MHS, and Patience White, MD, MA, from the "Got Transition?" program will speak about innovations in health care transition from pediatric to adult care. Register for Webinar ->

By |2018-11-05T02:28:05+00:00October 10th, 2018|Action, Event, Learnbase, Webinar|Comments Off on Webinar 12

Webinar 10

Michigan's plan for sickle cell disease across the lifespan: Lessons learned for California. The Michigan Department of Health and Human Services created a state action plan for sickle cell in 2015 that is being used as a model plan by the federal Health Resources & Services Administration.

By |2018-06-04T10:52:38+00:00May 30th, 2018|Event, Learnbase, Webinar|Comments Off on Webinar 10

Webinar NICHQ

Come hear lessons learned and recommendations stemming from the National Institute for Children's Health Quality (NICHQ)-led Sickle Cell Disease Treatment Demonstration Program. The national program focused on improving the quality and access to care for patients with sickle cell disease.

By |2018-06-04T10:33:06+00:00January 6th, 2018|Data, Event, Learnbase, Webinar|Comments Off on Webinar NICHQ

Webinar 9

Neuropathic pain: Can stress and pain itself cause a sickle crisis? by Dr. Thomas Coates. Tuesday, November 14, 2017, from 10-11:30 am PDT. Dr. Coates is the section head of Hematology in the division of Hematology Oncology at Children's Hospital Los Angeles, and the University of Southern California.

By |2017-11-15T04:45:03+00:00November 14th, 2017|Data, Event, Learnbase, Webinar|Comments Off on Webinar 9

Action

The National Heart, Lung, and Blood Institute just announced the Cure Sickle Cell Initiative, a collaborative research effort to accelerate the development of promising genetic therapies to cure sickle cell disease.

By |2020-04-17T04:32:49+00:00June 22nd, 2017|Action, Advocacy|Comments Off on Action

Knowledge and Action

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