Sickle Cell Patients Endure Discrimination, Poor Care And Shortened Lives
National Public Radio (Part 2)
Discrimination can affect the treatment of African-Americans with sickle cell disease, leading to premature death. Here is a success story from an Oakland, Calif., center dedicated to treatment.
Dr. Elliott Vichinsky talk – “It’s Your Health Network”
Listen to Dr. Elliott Vichinsky, Director of Hematology/Oncology at UCSF Benioff Children’s Hospital Oakland, talk to “It’s Your Health Network,” about the need for sickle cell education and awareness during International Sickle Cell Day.
Marsha Treadwell from UCSF Benioff Children’s Hospital Oakland
Sticking to a daily medication regime can help SCD patients manage their disease, but sometimes it’s hard for patients to remember to take medication. The Sickle Cell Center at Children’s Hospital & Research Center Oakland is working with a technology that monitors when pills are removed from a prescription bottle. The hardware, called GlowCaps, fits into pill bottles and can play a reminder when it’s time to take a medication, as well as send email reminders to help patients stick to regiments.
Face It Together- Network of Care
Sickle Cell Disease is the most common genetic blood disease in the country. But most people know far too little about it. The Northern California Network of Care for Sickle Cell Disease at UCSF Benioff Children’s Hospital Oakland is attempting to change that, by providing the needed education and resources to health providers and the community at large. See the clip, join the Network, and face the facts.
Children’s Hospital Oakland – Dr. Elliott Vichinsky
Dr. Elliott Vichinsky, Division Chief of Hematology/Oncology (cancer) at UCSF Benioff Children’s Hospital Oakland discusses the work being done at UCSF Benioff Children’s Hospital Oakland. From Children’s Blood and Marrow Transplantation Program, which has cured hundreds of children with sickle cell disease, thalassemia, and various cancers to the implementing of newborn screening programs for blood diseases in California and throughout the world, Dr. Vichinsky also stresses the importance of connecting with the entire patient family so that they feel supported throughout their child’s treatment.
Sickle Cell Public Service Announcement
The PHRESH blood awareness campaign is kicking off with the production of a Sickle Cell Public Service Announcement. The video below brings attention to the need for blood donors across the nation.