|County||Adults age 21 or older||Children and young adults||Total|
Since 2010, 12% of newborns with SCD are Hispanic ethnicity.
The 1,500 Hispanic infants who did test positive for trait made up 37% of the 4,000 babies identified with sickle cell trait in 2010. Fewer than 1% of the ~250,000 Hispanic newborns tested that year were found to carry sickle cell trait, however. These data are provided by the state’s Newborn Screening Program and the Centers for Disease Control and Prevention.
SCDC data shows that 8% are Hispanic ethnicity, with proportions higher in younger age groups and lower in older age groups.
|Emergency Dept. Visits
(discharged to home)
|Los Angeles||< 21 years||364||$36||$9||514|
|21 and over||1,881||$117||$29||3,850|
|San Bernardino||< 21 years||157||$10||$3||256|
|21 and over||484||$28||$7||711|
|Sacramento||< 21 years||69||$5||$1.3||117|
|21 and over||311||$21||$5||519|
|Alameda||< 21 years||122||$7||$2||174|
|21 and over||373||$29||$7||724|
|Riverside||< 21 years||83||$4||$1||85|
|21 and over||313||$16||$4||466|
|San Diego||< 21 years||80||$2||$0.5||51|
|21 and over||317||$15||$4||682|
Between 75 and 100 newborns are diagnosed with sickle cell disease at birth. About 3,500 newborns carry sickle cell trait. About 10% of births with sickle cell disease are Hispanic non Black, while nearly 40% of sickle cell trait identified newborns are Hispanic non Black. The rest are nearly all Black non Hispanic newborns, with a small number of White, Native American or Asian babies.
Children living with this disease in California usually have access to excellent care. A team of a pediatric hematologist and other specialists can work together with the child’s pediatrician to provide quality health care for both sickle cell related issues and the care for health problems and preventative care that all children need. A list of pediatric care centers is here.
While excellent care is available for adults living with sickle cell disease in the state, it can be hard to access due to insurance issues, hours of availability, and distance/transportation. The American Society of Hematology has a list of providers who see patients with SCD, and those transitioning from pediatric to adult care should work with their pediatric hematology team to assure a connection is made with an adult provider.
This disease is severe and can mean a high number of hospital inpatient stays. Additionally, pain crises bring patients to the emergency room when severe. That means the statewide cost for sickle cell is very high.
Billed charges for sickle cell inpatient stays in 2014 not including HMO systems totaled over $400 million, and about half of those charges were covered by Medi-Cal/Medicaid alone. The remainder were dual eligible (Medicaid/Medicare), private payer, some other government program, or self pay.
Estimates combining state emergency room treat and release visit data and federal ‘typical charge’ data tell us that there were 10,790 visits to the emergency room for sickle cell related causes in California in 2014 that did not result in admission, totaling $338 million in charges.